We are back in the hospital with Jonah. He has been having a lot of non convulsive status elipepticus which are basically very long seizures. 

His doctor pulled him off the MMJ study as it was not helping and probably making things worse. After pulling him off we all found out he was indeed on the real drug not the placebo. I was really hoping that the MMJ was going to be his magic bullet. Now we are back to more drugs. 

So far he is 2 days into a 5 day round of IV steroids and a new medication called Banzel. So far, neither seem to be helping. Basically, we will keep giving him new medications each one getting a little stronger or with more possible side effects until we find one that works.