Wednesday, July 17, 2013


I just can't believe my baby is one. His first year has gone by so fast. part of me is sad that the last 3.5 months that Jonah has been having seizures I haven't enjoyed or spent as much time with Ethan as I would have liked to.  Ethan comes along with me to chase around Jonah pretty much all day. I'm so thankful that he is a very easy, go with the flow, laid back little dude.  I think God gave me Ethan knowing I would need my little baby smiles and baby snuggles to help he get through these hard times. One snuggle from my baby takes my stress level down at least a couple notches. 

Ethan is starting to walk more and more on his own.  He knows that he can get around way faster crawling but once in awhile I will look over to see him taking a few steps all by himself.  He is also starting to communicate more with using gestures.  For example, he has started shaking and nodding his head for things he likes and doesn't like or want.  We haven't taught him as many signs as we have the others yet but he does know some like please and thank you.


Monday, July 15, 2013

Mayo Clinic

We finally have a date or the Mayo. The first one is on September 13 at 7:30am for a sleep deprived EEG. That same day we also meet with the doctor we have been trying to get an appointment with for quite some time. We also have 3 other scheduled appointments for various tests that include an MRI, lumber puncture, eye exam, blood work and a consultation with a dietitian. 

I'm happy that we finally have a date to look forward to that will hopefully give us more answers. My stomach is in knots though thinking of what is to come. 

Tuesday, July 9, 2013

Random thoughts

Families who homeschool should definitely read this magazine-
It is really encouraging. They give lots of advice, tips and resources.  Now, they offer it digitally for FREE! It is worth downloading the app.  

Joanh had another tonic clonic seizure this morning. That is now 3 in 5 days. I just don't get it.  They were all pretty mild but still, I hate when he has those kind.  

I can't believe my Vanessa is riding the Doodle Bug.  It seems like just yesterday she was riding around her Power Wheels around the yard. Time goes by so fast, to fast.

Thank you to everyone who called us today, sent out emails, stopped over, and prayed for us today.  It was a hard morning.  I am just so thankful to have the support of all of you.