Friday, February 11, 2011

Yesterday was my first day completely off Prendizone. It makes me kind of nervous because I keep wondering if the symptoms will come back. I have a couple appointments scheduled with experts in the field of ms type diseases in the next month.  One here in the twin cities and the other down at the Mayo Clinic.  So, we'll see what happens there. 

Friday, February 4, 2011

Results Are In....

Yesterday, my spinal tap NMO test that I had been waiting a month for came back.  Of course my Dr. was still out of the country.  Her RN looked over the results and told us that the results looked good to her meaning the test was negative but of course she's not the Dr. so blah blah blah........

Today, my nurse called me again to tell me that my Dr. is back in the country and has had a chance to go over the results herself.  She also said that the results of the spinal test are negative.  Which is great right?  Well,  yes but in the same breath she told me that she thinks I have ms again.  I just don't get it.  They just got done telling me that ms was completely ruled OUT. I guess with more research on her part that ms can show itself in different ways.  So she still wants me to get a second opinion and still go down to the Mayo.  I don't think they know what the heck is going on.  I am just really frustrated.  I went from having a good day to a bad day.

I met this lady from my church that who is a naturalist or whatever you call it.  She has recommended having a complete food allergy test done to see if maybe it could be a food allergy.  So, that's what I am trying to get ordered now.    

That's all for now.  I'll continue to post as I find things out.