Today, Barb and I made the long trek down to the Mayo. We left this morning at about 6:30am and didn't get home until 6:15pm. It was a long day. Both Ethan and Jonah were troopers.

Jonah had his next infusion of IVIg today. It was different than last time. Last time he was given 3.6ml where as this time it was 10ml. Quite a big difference. It took about and hour longer. He seemed to handle it fine so far at least. 

Praise God Jonah has not had those night seizures the last 2 nights! 

We found out today that the appeal to the insurance company for them to pay for the IVIg was denied. So we cannot have the infusions done locally. We will need to drive down to the Mayo every 2 weeks. This IVIg is extremely expensive. Insurance  says it's still experimental in treating epilepsy.