Ethan

I just can't believe my baby is one. His first year has gone by so fast. part of me is sad that the last 3.5 months that Jonah has been having seizures I haven't enjoyed or spent as much time with Ethan as I would have liked to.  Ethan comes along with me to chase around Jonah pretty much all day. I'm so thankful that he is a very easy, go with the flow, laid back little dude.  I think God gave me Ethan knowing I would need my little baby smiles and baby snuggles to help he get through these hard times. One snuggle from my baby takes my stress level down at least a couple notches. 

Ethan is starting to walk more and more on his own.  He knows that he can get around way faster crawling but once in awhile I will look over to see him taking a few steps all by himself.  He is also starting to communicate more with using gestures.  For example, he has started shaking and nodding his head for things he likes and doesn't like or want.  We haven't taught him as many signs as we have the others yet but he does know some like please and thank you.

HAPPY BIRTHDAY, ETHAN!!! 

Mayo Clinic

We finally have a date or the Mayo. The first one is on September 13 at 7:30am for a sleep deprived EEG. That same day we also meet with the doctor we have been trying to get an appointment with for quite some time. We also have 3 other scheduled appointments for various tests that include an MRI, lumber puncture, eye exam, blood work and a consultation with a dietitian. 

I'm happy that we finally have a date to look forward to that will hopefully give us more answers. My stomach is in knots though thinking of what is to come. 

Random thoughts

Families who homeschool should definitely read this magazine-
http://thehomeschoolmagazine.com/
It is really encouraging. They give lots of advice, tips and resources.  Now, they offer it digitally for FREE! It is worth downloading the app.  

Joanh had another tonic clonic seizure this morning. That is now 3 in 5 days. I just don't get it.  They were all pretty mild but still, I hate when he has those kind.  

I can't believe my Vanessa is riding the Doodle Bug.  It seems like just yesterday she was riding around her Power Wheels around the yard. Time goes by so fast, to fast.

Thank you to everyone who called us today, sent out emails, stopped over, and prayed for us today.  It was a hard morning.  I am just so thankful to have the support of all of you.

Just when Jonah has a good day, satan, has to sneak in and ruin it. This morning before church he fell over and had a short tonic-clonic. I really hate when he has those. 

Praise God though, he came out of it quickly and is having a good rest if the day. 

Thanks for keeping us in your thoughts and prayers. 

This is a short one, but, I just want to share what a good day Jonah had. He had ZERO drops today while I was with him. He was at my moms for a couple hours and he had only one at her house. Then, we went to an access picnic at a park and he had zero there also.  Praise God, praise God, praise God!! 

Happy 3rd birthday, Jonah

This was a very special birthday for Jonah. Next year be may not get to enjoy cake and sweets like he did this year. With the kind of seizures he has, one of the most effective forms of treatment is a diet. The ketogentic diet. It is a high fat low carb diet. You basically train your body to make energy out of fat I stead of carbohydrates. So, we wanted to make this birthday very special. 

To celebrate we had a family gathering at grandma's house with family. Thank you all who came out to help bless Jonah today. 

He had a very fun day. Raspberries in bed with dad to start the day, a doodle bug ride down to the park, water and bubble fun with his new toys, going over to grandma's to hang out with family, eating cake, opening a few more presents, plus more. 

It seemes like he was just my little skinny thumb sucking baby and now he's already 3. Enjoy your kids when they are still kids. It goes so fast. You will miss it. You won't be able to turn back time and relive it or change the past. So, make each and everyday count. Before you know it they will be gone, out on their own. They will have their own families.

To my Sweet Jonah, I love you so much. More than you will ever know. My prayer for you tonight and every night is for God to heal you from your seizures, completely heal you. 

Chuck E Cheese

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Tonight, we celebrated Jonah's birthday at Chuck E Cheese. His actual birthday is not until Saturday, but, we will be having a family birthday for him that day. 

We all had a fun time at CCs as we always do. I love seeing Jonah so happy!! I'm so glad that the meds he is on have minimal side effects and that seizure distorter has not taken my little boy from me, the little boy that I know.  I pray that it never will.