Tuesday, July 1, 2014

Jonah had 2 more big seizures in his sleep last night. I really hope this is not a new pattern. It's hard to sleep when your child wakes up seizing.

Other than the night seizures Jonah has been having great days. He has mastered riding a two wheel bike. I think we went around the block 10 times today. 

I will be taking Jonah back down to the Mayo on Thursday to get another IVIg infusion. The prior authorization from our  insurance company was declined. Which means they don't want to pay for IVIg for Jonah because it is so expensive and  they think it is still experimental or something I think. We can not have it done local because of the insurance issue. 


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