Jonah continues to have a quick tonic or myoclonic within 10 minutes of falling asleep almost every night and an occasional tonic clonic closer to morning. I would like to see him 100% seizure free but am so thankful he has been seizure free during the day for 1 whole month already. Praise God! He haven't fallen and hurt himself from a seizure in over a month.
We will address the night time seizures during out next appointment with his doctor in 2 weeks. His ketones have been low so they my want to shut something with his diet before then.
Getting his infusion