Saturday, July 12, 2014

The appointment at the Mayo was pretty quick and uneventful for driving over 4 hours to get there and back. She was very pleased to hear that he was completely seizure free during the day and almost during the night.

She wouldn't comment when asked what she thinks is doing it but did say that that she would like Jonah to stay on IVIg for at least 2-3 months and that it is definitely NOT experimental. She also said that if he remains seizure free we can start peeling back back things. I'm thinking Depakote. 

Jonah continues to have tonic non convulsive seizures once or twice after falling asleep and or or a tonic clonic convulsive closer to morning occasionally. Other than that during the day has been completely seizure free. 

Thanks again for your continued support. 


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