Sorry it has been so long since an update. I have so much to share. I only have a minute so I will share today's events. The morning started with Jonah waking up about 7:30am and going right into a seizure state. He would go in and out of it so I wasn't sure if I was suppose to give him his emergency meds or not. So Justin ended coming home from work early at about 12:30. It was very stressful. It was his first non-convulsive status epilepticus which is basically a prolonged seizure or cluster of seizures. His went on from 7:30am to 2:30pm.
We had increased his meds 5 days before which i think caused this. We have decreased the meds since then.
We have hired this diet specialist. She seems great! We start new meals soon.