A couple things..

We are OUT of the hospital. Praise God!! Jonah was discharged tonight around 8pm. He will need to come back for the next 2 days to have infusions so we will stay down here until Friday evening. But it is nice to be out of the hospital. 

The main seizures Jonah has been having today anyway are tonics. Not to be confused with tonic clonics. It's a stiffening of his body and his arms come up and eyes open. It is scary to watch but at least he's sleeping. 

First and foremost thank you everyone for your prayers. We are feeling them. I know so many people from individuals to families to small groups to entire Church services having been praying for our Jonah. It is very humbling that so many people care about our little boy. 

I know that many of you have used the paypal link to donate to our Jonah fund. Thank you so much for your monetary generosity. Things add up quickly staying away from home for 7 nights 8 days. Gas, food, medications, co-pays...

Jonah will be 4 this Sunday. I think his first birthday present was getting all of those wires off of his head so he could get off of his hospital bed. 

Kristi