Sunday, March 1, 2015

 2 years ago today marks the day that Jonah had his first seizure. I remember it like it was yesterday. I can't believe it's been 2 years. I remember thinking he had tripped on a slipper, hit his head and as a result had a seizure. It was SO crazy. Then, almost 2 weeks later he had another seizure. Shortly after that is when we knew he had epilepsy but little did we know it would be such a nightmare. At first we thought it was just a common juvenile case of epilepsy that he would most likely grow out in 2 years. But then the drops stared and the myoclonic jerks and facial seizures and absent seizures and the list goes on. 

I'm so thankful that we found a wonderful doctor down at the Mayo Clinic. Although what Jonah has is a rare kind of epilepsy they seem to very knowledgable about what he has. 

Thank you EVERYONE for the outpouring of love you have shown our family as we walk thorough this battle with Jonah. 

One thing I have been thinking about lately is that the biggest thing that Jonah needs is Jesus' healing hand. Not the money to pay for bills or great doctors or supportive friends and family. Don't get me wrong those are SUPER important but what he needs, as a friend pointed out, is Jesus' healing hand. 

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