The seizures have been creeping back in these past few days including a short tonic clonic in his sleep this morning. Justin and Jonah will be going back down the the Mayo today for an IVIG treatment. We are so thankful the infusions are helping. I just wish the benefits would last a bit longer. It seems like it works great for about a week and then the seizures creep back in. It would also be nice in insurance would step in and pay for them.
We have heard back from Justin's work and they have reviewed the case and have told us that they will not be paying for it because our insurance company states that it is an experimental form of treatment.
Here's a couple more Valentine pictures:
Projectors are so much fun! Jonah is playing Mario on Ethan