We finally have a date or the Mayo. The first one is on September 13 at 7:30am for a sleep deprived EEG. That same day we also meet with the doctor we have been trying to get an appointment with for quite some time. We also have 3 other scheduled appointments for various tests that include an MRI, lumber puncture, eye exam, blood work and a consultation with a dietitian.
I'm happy that we finally have a date to look forward to that will hopefully give us more answers. My stomach is in knots though thinking of what is to come.