Jonah did have a FANTASTIC 5 day run! Unfortunately, the seizures came rolling back in today. He probably had at least 10. The New drug, Banzel, has been doubled over the last 2 days. Maybe that has something to do with the increase of seizures. Maybe it's the wean of the Depakote. Could it be that he's getting into carbs again? Or maybe that the steroids are wearing off? Who knows.
It was such a relief to see him doing so well. I was able to let my guard down a little. This has been such a roller coaster.