Monday, September 28, 2015

Jonah has been doing FANTASTIC during the day! The steroids have really helped keep the daytime seizures at bay. Unfortunately, each early morning Jonah will have 1-2 tonic clonic (grand mal) seizures that last at least 10 minutes. :( I am praying those will not continue as I wouldn't want to have to start, Onfi, a new and stronger medication for that since he's having such good days. The night seizures are the biggest risk for SUDEP(sudden unexplained death in epilepsy) which is a real risk for someone like Jonah. 

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