Here's my Jonah update the best as it can be because it will probably change tomorrow. Since the hospital we increased Depakote which seemed to do nothing. We increased the ratio of the diet which seemed to help decrease the intensity of the nightly tonic seizures most of the time. Also, he wasn't having any saying activity which again is fairly normal. The third change we have made is stretching IVIg treatment from every 2 weeks to every 3 weeks. I'm not sure if that has made a difference or not. 4AM this morning he had a small grand mal seizure and last night he had a tonic seizure followed by an absent seizure while he was awake. He also had a grand mal seizure Monday in his sleep. So is that from the increase length between infusions? I don't know. It is so hard to tell. I know Justin would say for sure it is.
A FEW DAYS LATER: