Wednesday, January 28, 2015

Jonah has recovered from his illness and with that has not been having as many seizures!! He had IVIG on Friday which has helped. The bottom line is though he is still having daily seizures. I wish they would just go away. He has still been having 2-8 seizures every day. 

We finally got the okay to wean Depakote! It will be an eight week wean to which we are in week three of. That's kinda why he's having more than usual seizures lately I think. 

I spoke with a ketogenic diet specialist that we will be hiring to help tweak the diet to hopefully make the diet more effective. She seemed to have quite a few ideas. 

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