Jonah's appointment went pretty good today. We didn't get the ok to wean any pills right now which was kind of a bummer. Plus, they are increasing his ketogenic ratio so he will be getting even more heavy whipping cream with each meal.
The infusion went pretty good. He had a couple tonics during it and actually two quick myos during his appointment (while awake) but over all he did great getting the IV in and what not.