Tuna sandwich(27 tuna 16 Hellmann's Mayo) with pickles, cream mixed with diet root beer and frozen coconut oil.
Spaghetti and meatballs meal. Made with Walden Farms pasta sauce(carb free), miracle noodles, 2g butter and ground beef. This meal is missing 12g coconut oil, 58 grams of cream and 37g raspberries. 400 calories
I mentioned a while back that Jonah's bike had been stolen from our yard. Someone at Justin's work stepped forward anonymously and bought Jonah a new bike and helmet. Now that his wrist and collar bone are not broken he rides his new bike everyday. THANK YOU to whoever gave Jonah this gift!!
Jonah has actually been doing very bad lately. He is been in and out of seizures A LOT over the last couple weeks. We are still waiting for the CBD study. We actually heard directly from his doctor today. She told us that the study will start for sure within the first 2 weeks in July. Supposedly they will be starting Jonah and 2 others before the rest because they are in such bad shape. Don't get me wrong he is still enjoying the summer and is a HAPPY 5 year old boy, he is just having more than usual seizures.
Happy 5th Birthday, Jonah! As We celebrate Jonah's birthday today I want to celebrate him. No talk about seizures or whatever tonight. Just a time to enjoy what a sweet, happy little boy Jonah is despite everything he has been going through since he was 2.